Many dementia caregivers feel guilty when they experience moments of happiness. This reflection explores why joy and grief can exist together and why allowing yourself small moments of light can help sustain you through the caregiving journey.

Caring for a parent with dementia can quietly consume every part of life. In this personal reflection, I share the habits, hobbies, fears, and small acts of self-preservation that help me stay connected to who I am beyond caregiving.

I never imagined how often I would end up saying the words “Mum has dementia.” It comes up in places I never expected, during phone calls about a broken door, in hospital waiting rooms, and sometimes in brief exchanges with strangers on public transport. Each time it is said, it carries a mix of explanation, vulnerability, and quiet acceptance. This reflection follows those everyday moments where ordinary tasks become complicated, and where a simple sentence becomes a way of

Most people see the practical side of dementia caregiving. They see the meals prepared, the appointments attended, and the shopping bags carried home. What often goes unseen is the constant mental, emotional, and administrative work happening in the background. This is a reflection on the invisible load that many caregivers carry every single day.

A personal reflection on what happens when a parent with dementia begins relying on your presence for emotional safety. Exploring shadowing, reassurance, caregiver exhaustion, and the quiet weight of becoming someone’s safe place.

For years, I told myself I didn’t need help. Saying “I’m struggling” felt strange - but it started a quiet shift, showing that asking isn’t weakness.

Caring for my mum has changed me in ways I didn’t expect. Not through clear lessons, but through small moments that have settled over time.

A receptionist looked at me and asked, "are you her carer?" Not "are you her son?" Just that one word. And without thinking, I said yes. I've been sitting with that moment ever since.